I love the topic for today:
If you have been blogging for a while, what is your favorite sentence or blog post that you have ever written? Is it diabetes related or just life related? If you are a new blogger and don’t have a favorite yet, tell us what motivated you to start sharing your story by writing a blog?
The question prompted me to read back through my past posts – something I don’t often do. One that stood out to me was from last year’s Diabetes Blog Week. My “Tell Me a Story” post, written by my insulin pump, is one of my favorites because it captures the anxiety I felt about using a new device. Here are the first few paragraphs:
It’s funny now to think of how scared of me you were initially. When I arrived on your doorstep, you were cautious taking me out of the box. You had shaky hands as you picked me up and felt my buttons. I was hoping our friendship would start right then and there, but you tucked me away for training day, not quite ready to bond.
I sat in my dark box and counted down the days for our next meeting. Finally, the trainer arrived and I emerged again. How glorious it felt to get that jolt of battery energy and be primed for the very first time. You were hesitant as you prepared our first insulin cartridge and infusion set, but you did it. You were pumping! I wanted to yell, “You did great! Keep it up!”
I remember the excitement you felt when the trainer left that evening, but I also remember the fear. Even though it was three days off, you were terrified of changing our next infusion set. You were scared that I was going to accidentally give you too much insulin and you were going to have a devastating low. You were anxious about if you’d get used to being connected to me. “Don’t worry,” I wanted to tell you.
Intrigued? You can read the rest here.
*Read other Diabetes Blog Week Day Six entries here.
On day five of Diabetes Blog Week, we are writing about one of my favorite things: food. The prompt is:
Taking a cue from Adam Brown’s recent post, write a post documenting what you eat in a day! Feel free to add links to recommended recipes/shops/whatever. Make it an ideal day or a come-as-you-are day – no judgments either way.
I read Adam’s food posts recently and was surprised to see how similarly we eat. Below are some of my typical meals.
- Yogurt and granola – Plain Greek yogurt with berries and nut granola (I LOVE this Grain Free Chocolate Granola from Delighted Momma).
- Avocado toast – One piece of whole grain bread toasted and topped with half an avocado and a couple of fried or poached eggs.
- Roasted veggie bowl – Roasted veggies with a little brown rice or quinoa, and some kind of protein (often a poached egg). Roasted veggies are great because you can prepare a huge batch and use leftovers for days. I just toss raw vegetables with olive oil and sea salt, and then roast them in an oven set at 400 degrees.
- Kitchen sink salad – A big bowl of salad greens with whatever else you have in your fridge – a variety of veggies (fresh or leftover roasted), nuts, cheese, and maybe a little fruit. The more items you add, the more interesting the salad. I make my own dressing with olive oil, balsamic and Dijon mustard.
- Roasted chicken and veggies – Roast chicken thighs (this is a delicious and super speedy rub), alongside veggies like cubed sweet potatoes and Brussels sprouts.
- Stir-fry – Throw together bite-sized meat and loads of veggies, and serve with a little brown rice. Lately I’ve been making a cashew chicken recipe that I learned to make in Thailand.
- Whole grain pasta – For a heartier meal, pair whole grain pasta with meat and veggies. I just made this New York Times recipe for whole grain mac and cheese with broccoli, and added ham.
- Dark chocolate – I love dark chocolate and usually have a square or two in the evening.
Like Adam, I find that managing my blood sugar is easiest when I eat about 120 grams of carbs or less a day. I cook most of my meals myself, focus on whole foods, and always include protein. When I bake, I tend to use almond flour (see my recipe posts for a Chocolate Torte and Double Chocolate Cherry Cookies), which is low carb a has a very low glycemic index.
*Read other Diabetes Blog Week Day Five entries here.
It’s day three of Diabetes Blog Week and we’re in spring cleaning mode:
Clean It Out: Yesterday we kept stuff in, so today let’s clear stuff out. What is in your diabetic closet that needs to be cleaned out? This can be an actual physical belonging, or it can be something you’re mentally or emotionally hanging on to. Why are you keeping it and why do you need to get rid of it?
I’m going to focus on the physical here. One thing I would love to clean out is the constant mess of my diabetes supplies. As anyone with the disease knows, the number of boxes, gadgets, and sharp things lying around can be overwhelming. It feels like I constantly need to organize new supplies and discard used ones. While I have a decent system down, it is far cry from perfect. My used lancets make my meter case bulge, old infusion sets pile up until I take the time to remove the needle and recycle them, and test strips show up everywhere. Sometimes I just feel burdened by so. much. stuff.
A (very small) sampling of the supplies that weigh me down.
Am I alone here? Does anyone have advice on how to stay on top of the endless supplies?
*Read other Diabetes Blog Week Day Three entries here.
Today’s topic centers on change:
Either tell us what you’d most like to see change about diabetes, in any way. Or reflect back on some changes you or your loved one has seen or been through since being diagnosed with diabetes.
During last year’s Diabetes Blog Week, I wrote about how I want to see a cure for type 1 diabetes. While a cure is still the biggest change I want, today I’ll focus on management tools.
The best improvement would be a closed-loop system that manages blood sugar entirely on its own. There is a lot of exciting work being done this field, including by Dr. Ed Damiano at my alma mater, Boston University. The goal of his bionic pancreas is to “reduce the impact of diabetes on those who have to live with it until a cure is found.” It will “automatically make decisions about insulin and glucagon dosing every five minutes. That’s 288 decisions per day, 7 days per week, 365 days per year.”
I have followed trials of the bionic pancreas and other closed-loop systems and been cautiously optimistic about their performance. Many trial participants have blogged about their experience with the systems, including Kelly Close in 2013. She said in her post, “Getting rid of hypoglycemia and hyperglycemia for a week was one of the most powerful things I’ve ever experienced.” Kerri at Six Until Me also wrote a great recap on seeing the Bionic Pancreas in action at Clara Barton Camp (make sure to check out the video at the bottom of her post).
I hope a safe and reliable closed-loop system becomes a reality for those of us living with diabetes. Soon. While it’s not a cure, it would be life-changing to be freed from the constant burden (and major time suck) of blood glucose management.
*Read other Diabetes Blog Week Day Four entries here.